MG journal

I’ve been having symptoms of MG for 2 years now – although I’ve only been diagnosed 6 months ago. It was a few months after my daughter was born and it was confused with postpartum depression with my doctors. Over the 6 months I started 4 60mgs of Mestinon and now at 8/ day. I had my thymectomy 3 months ago.

My symptoms continue getting worse and recently I have severe double vision.  I have been prescribed Prednisone and Imuran in small doses apparently but I’m still hesitant to take them.  I am worried of the complications these drugs have + I would like to have another kid hopefully in the next few years and don’t want severe medications to interfere with my pregnancy.

I would like to hear from people with a similar story – possibly moms  who had children after their diagnosis. I know the focus should be my health and not family planning – but I am still accepting that my life isn’t perfect anymore due to MG.

Also, I take supplements like Creatine, Phosphatidyl Choline, and Heel Homeopathic remedies. – these have been added recently so I don’t see much improvement….

Has anyone else see improvement with supplements, improving circulation, exercise, lifestyle changes…