I have started a ‘natural’ support treatment for my MG about 2 months ago, and would like to hear people’s experiences with supplements etc. that they tried or heard of. (this is not intended to treat your condition – please seek advise from your own doctor. thanks.)
I am currently on 90mg / 4times a day & these supplements (some suggested by my Naturopath and some I researched myself):
Lecithin granules
Phosphatidyl Choline
Creatine
Fish Oil
Vit. D + K
Spirulina/ Chlorella
Heel Homeopathic Remedies : Arsuneel, Gelsemium Homaccord,
Aesculus Compositum, Galium
+ I increase vit. E, protein in my diet + try to eat healthy.
+ I’m doing a parasite cleanse – I’m half way.
I have also researched these but I haven’t started them: Huperzine A, DHEA, Freeze-dried thymus capsules (if you had a thymectomy), Coenzyme Q10, NADH
I know conventional medicine/ doctors don’t support this type of treatment – but in my research so far there’s evidence that proper mineral/ vitamin support alongside a stress- free (lol) lifestyle can boost your body’s natural ability to repair itself.
I have noticed a moderate improvement in the last few weeks alone. I have added a mild workout consistently every 2-3 days plus I try to reduce stress w/ rest, nap, breathing exercises/ meditation + I get reflexology massages 1/wk.
Let me know if you have tried or heard of a certain support treatment and if anything has worked for you. Hey, the doctor’s are not telling us everything – mine isn’t – with the internet now, it’s easy to do our own research and help ourselves… It’s all in our hands – let’s get better together. ;D
Blogger, Recipe Developer, Photographer and Author. Loves healthy food, photography, sunshine and dancing in the kitchen with her two daughters. 
B 12
B 12
B 12
Amazing!
Vitamin D because research shows that people with neurological conditions are low in Vitamin D. Bit late for me , wish I knew that about five years ago but does help. I eat as much as I can of organic and biodynamic food that I can afford. We grow our own vegies so thats easy. We have free range chooks and when we buy chicken to eat it is always free range with no hormones given. I am interested to see what everyone else is doing/taking.
I’m going to post a link that I just read and haven’t researched the author, but I found it incredibly interesting. I haven’t done a lot of research on the MG, my main concern has been lupus because I didn’t think I had MG. To my surprise I have it a whole lot worse than I thought. However, I have done a lot of research into natural healing and a lot of what this guy says makes sense. I know that I’m going to get some of his suggestions and I know when I have felt best in my life and that was during a very strict diet and taking my herbs for different things. Definately avoid the fluoride!!!!
http://www.alternativehealth.co.nz/diseases/myathenia.htm
That article is very long!! I put it under my favorites so I will have it to look back on. I have always loved spirulina. I love the taste and the smell of it which is strange because most people don’t like it, the smell that is. I have also used the skullcap and valerian with great success. The talk about pesticides really peaked my interest because I used to live on a farm and when they sprayed the crops I could smell and taste it for a full week. I always dreaded the spraying times, but this was a small farm they didn’t have the $ to use the big dog pesticides. Thank goodness.
B vitamins are important in neurological function. Potassium is important to muscle function. I have a banana on my cereal every day and I take B supplements. I agree with socialwrkr4u…B-12 very important. You have to take it sublingually because it gets destroyed by stomach acid. Vitamin D has been gettinga lot of press, as Jules3391 said. I don’t tolerate it well so I can’t say much about it. Good topic; thanks for bringing it up
Reading through these posts…I thought magnesium was something we are supposed to avoid. I am fairly certain that was on my list of things to avoid! Check with your doc!
Forgot to list my findings: here’s a couple – I am also seeing a Naturopath so several of the supplements are from her ie. spirulina & chlorella, Heel products and some of the other ones.
I also have Manganese in with my Magnesium pills but I noticed it’s not much – I will get an additional supplement. I have a B complex mulitvitamin so my vit. B’s are ok. I will look into the castor oil (I will have to read that article again RedDutchGirl ;) – it’s not easy to read at all all in these continuous paragraphs ;)
Thanks! This is really coming together and making sense… isn’t it? Big Hugs!
I take most of what you do…but Calcium/ Magnesium is not good for MG patients from what I’ve read….Manganese is better….
I have vit K after reading it was good for MG…but haven’t used it as it is a blood thinner….may try it if the forum reports it helps….
I have had symptoms of MG since early childhood (3 -4 yrs old). I’m 60 yrs old now…went thru 10 yrs in the Navy battling bouts of extreme weakness, but managed to get through it. I was diagnosed in 1991 and progressed from 60 mg of mestinon 4 X daily to 180mg at night, followed by 4 X daily 60 mg…
I am very active physically…running 3 or 4 half marathons a year while working out strenuously with weight/runs 5/6 days a week…
I know I am lucky with minimum MG symptoms…..but I read and follow doctor/web sites recommendations, but always follow my own informed instincts…
I take DHEA and Q10….
Wab, Thanks for your reply! It’s great to hear from you and I’m so happy that you are living a normal life and running marathons… – OMG that’s great. I just wrote a ‘goal’ list yesterday and on it was – JOGGING! You are probably the wises of us all and I love that you took things in your own hands – and did so well. Have you done the cleanses too? are you following a strict diet? One thing I have to recommend to add is Sprouting – fenugreek for example has a blood purifying power – it’s amazing stuff and so easy and inexpensive. You can look on my blog for how I did it. http://www.pureella.com/?p=483
Have you ever taken any other medications? Are you still on Mestinon? I looked into DHEA but don’t take it because of the male hormonal side affects ;) (By the way – I haven’t been on this site in a while but I feel like I’m ‘normal’ I take 2-3 doses of mestinon from my 8 tabs. and back at doing weights and strengthening now ;) Big Hugs to you – you’re an inspiration! ;D